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Tag: National Policy for Rare Diseases 2021

Negotiating a life with amyotrophic lateral sclerosis

Posted on August 17, 2023 By admin
Negotiating a life with amyotrophic lateral sclerosis

The only way Nita Parekh (69) of Pune, is able to communicate with her family and, on rare occasions, with others is by blinking her eyes and nodding slightly. “The last time I saw her standing was probably in August 2021”, said Sohil Parekh (45), Mrs. Parekh’s only child and primary caregiver, along with his…

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